How to Handle a Family Member with Dementia, Part 1
Introduction
This situation is undoubtedly one of the most heartbreaking ones anyone can face. Dealing with a family member who has dementia—whether mild, moderate, or severe—can be incredibly challenging, both emotionally and practically. Dementia often affects memory, behavior, communication, and independence, and the progression varies from person to person.
Family members and caregivers often experience emotional stress, confusion, and frustration as they try to navigate the situation. Most people facing these challenges are unsure about how to act or what steps to take in this demanding situation. Here are some guidelines for managing the care of a loved one with dementia at each stage, provided by doctors, nurses, and caregivers.
We encourage you to share this page on your social media networks for friends and neighbors dealing with this important issue.
1. Understanding the Stages of Dementia
In an earlier Engage Estero article, the topic of dementia and the differences with Alzheimer’s disease was explained1. Dementia typically progresses in stages, each with its own set of challenges:
Mild Dementia (Early Stage):

Understandably, it is important to first differentiate between forgetfulness and dementia. Engage Estero reported earlier this year about this critical differentiation2. “While some forgetfulness is normal during aging, these concerns can trigger anxiety, especially if the changes in memory are more frequent or impactful.
Recognizing that some memory lapses may be part of normal aging is essential. Still, when forgetfulness starts to interfere with daily life, it’s always a good idea to consult a healthcare professional to rule out any underlying medical conditions.
For many, aging itself can be a source of anxiety. The changes that come with growing older, including changes in memory and cognitive function, can be distressing.”
However, in dementia, symptoms such as memory lapses, occasional confusion, difficulty with once-easy tasks, and mild personality changes will start to become apparent. In this instance, it is essential to:
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- Offer gentle reminders and prompts without being condescending.
- Encourage independence where possible (e.g., allow them to perform tasks with some guidance).
- Maintain routines and structure to create a sense of security.
- Be patient and avoid correcting them when they forget things.
Moderate Dementia (Middle Stage):
Symptoms tend to involve increased forgetfulness, confusion about time and place, difficulty recognizing loved ones, mood swings, and increased dependence on others for tasks. The advice from professionals at this stage of the disease centers around:
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- The need to break down tasks into smaller, more manageable steps.
- Use simple language and ask one question at a time.
- Providing emotional support—dementia can cause anxiety, depression, or frustration.
- Ensure their safety: remove hazards and install safety measures (e.g., locks, alarms).
- Be prepared for behavior changes like agitation or wandering.
Severe Dementia (Late Stage):
In this instance, symptoms involve loss of verbal communication, inability to recognize familiar people, difficulty swallowing, and significant physical decline. At this stage, if the decision has not been made, it may be time to enlist the help of care facilities equipped and prepared to look after such patients, sad though this may be. Guidance typically centers on:
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- The need to focus on comfort and pain management
- The use of non-verbal cues, like touch or visual reminders, to communicate
- Provide regular hygiene care, including assistance with eating, drinking, and toileting
- Ensure the living environment is calm and free of stressors that may trigger agitation
Caring for a Loved One with Dementia: A Stage-by-Stage Guide
Supporting a family member with dementia is emotionally and practically demanding. As dementia progresses, from mild to severe, it affects memory, behavior, communication, and independence, leaving caregivers often overwhelmed and uncertain.
Key Points by Stage:
Mild Dementia (Early Stage):
- Differentiate normal aging from dementia symptoms.
- Use gentle reminders and encourage independence.
- Maintain routines and avoid correcting memory lapses.
Moderate Dementia (Middle Stage):
- Expect increased confusion and mood changes.
- Simplify communication and tasks.
- Prioritize emotional support and safety measures.
Severe Dementia (Late Stage):
- Prepare for significant physical and cognitive decline.
- Focus on comfort, non-verbal communication, and hygiene care.
- Consider professional care facilities when needed.
Part Two: Continuing the Journey
Specific tips and considerations for individuals and families perparing for or dealing with dementia.
References
- Understanding the Difference: Alzheimer’s Disease vs Dementia, Allan Bowditch Engage Estero, May 9, https://esterotoday.com/dementia/
- Forgetfulness: Aging or dementia? Allan Bowditch, Engage Estero, February 2025. https://esterotoday.com/forgetfulness-aging-or-dementia/
If you have related information or a real-life situation you’ve experienced that could help others in a similar situation, please let me know. I’d be pleased to share it as a follow up. Thank You.
Disclaimer
Engage Estero provides information as a service to our readers and is not intending to provide individual medical advice. Always consult with medical professionals or emergency services before changing or initiating medical treatment..
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Allan Bowditch
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